Hanoch's Story: Langerhans Cell Histiocytosis (LCH)


Wait for the Lord; Be strong, and let thy heart take courage; Yea, wait thou for the Lord. (Psalm 27:14)

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Hanoch lives two lives, one a regular, "normal" life where he works, likes hanging out with his friends and taking the car everywhere and anywhere. His other life is filled with doctors, tests, hospital visits and treatments which he tries not to let infringe on the first one. This is Hanoch Smith's story on his struggle to combat the rare disease Langerhans cell histiocytosis (LCH). He is being treated at the Chaim Sheba Medical Center, Tel Hashomer, Israel.

One of the worst things about being told Hanoch had LCH was the feeling that we could not do anything to help him. So we started by reading lots of medical information and articles that we would never normally have read in order to give us a better understanding of Langerhans cell histiocytosis. Many of these articles are catalogued in our database. This site has some information about LCH as well as Hanoch's personal story and current journal updates. Hopefully, we will also be able to help others who are battling with histiocytosis.

There is a special section with facts about histiocytosis in Hebrew, which we believe to be the first of its kind, to which we hope to keep adding more material.

And, in addition to Hanoch's story, there is a timeline of all his medical events. Thanks to Hanoch, there is hardly a hospital department that we have not made acquaintance with.

To the story...

To the journal...