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Histiocytosis Association of America

The Histiocytosis Association of America, created in 1986 by Jeff and Sally Toughill, is an international partnership of patients, families, physicians and friends. This nonprofit organization was formed: To promote scientific research into the histiocytoses, seeking to develop better means of control and management of the diseases, and ultimately seeking to develop scientific means to prevent and cure them; to provide solutions to some of the problems which are specific to patients suffering from this disease and to offer support to such patients and their families; and to educate and promote education related to the histiocytoses.

Histiocyte Society

The Histiocyte Society is a nonprofit organization, comprised of an international group of more than 200 physicians and scientists, committed to improving the lives of patients with histiocytosis by conducting clinical and laboratory research into the causes and treatment of this disease.


PubMed is a service of the National Library of Medicine (NLM). It includes over 14 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.


Central Nervous System Disease in LCH, by Nicole Grois, M.D., St. Anna Children's Hospital, Vienna, Austria.
Overview of Langerhans cell histiocytosis in the central nervous system. Full text...

Neuropsychological Problems in Langerhans Cell Histiocytosis, by Vasanta Nanduri, M.D., Department of Pediatrics, Watford, Hertfordshire, U.K. Edda Unger, M.D., Children's Cancer Research Institute, Vienna, Austria Nicole Grois, M.D., Children's Cancer Research Institute, Vienna, Austria.
Summary of neurological deficits and methods of assessment.
Full text...